Our Promise to Nicholas Foundation is proud to anounce this year’s fundraiser in remembrance of Nicholas’ marathon runner who passed away in the NYC half marathon in 2013. The race will be held on October 2, 10am, starting at Wayland Town Building
Register online here: www.johntanner5K2016.racewire.com
If you have any questions, please contact heatherdainiak@hotmail.com or 603-785-4249
Details below from event page:
On Sunday October 2, 2016 at 10 a.m. the Our Promise to Nicholas Foundation (OPTN) will host its forth annual John Tanner Memorial 5K Run and Walk. The race will start and finish behind The Wayland Town Buildings @ 41 Cochituate Road Wayland, MA.All proceeds will go to support Batten Disease Research.The John Tanner Memorial 5K Run and Walk is dedicated to the memory and legacy of John Tanner and Nicholas Dainiak of the Our Promise to Nicholas Foundation. John Tanner was an exceptional athlete and competitive runner who unexpectedly passed away while running the NYC half marathon in spring 2013. He devoted all of his races to raising awareness about Nicholas and Batten disease.
Nicholas, our son, lost his battle with Battens Disease on his 11th Birthday, May 9, 2014. He was diagnosed 7 years ago with a life threatening brain disease known as Neuronal Ceroid Lipofuscinosis, or Batten disease. Children with this disease suffer from seizures, blindness, dementia, immobility, and will typically die between the ages of eight and twelve. Batten disease is potentially curable if given enough support for research.
Our Promise to Nicholas Foundation directly funds worthy research initiatives. We are committed to support the research projects listed below for 2016.
-RESEARCH GRANT SUPPORT: We are funding our second year in the development of a natural history and biorepository database for INCL and LINCL (Harvard University, MGH & Univ. of Rochester).
-INTERNATIONAL SCIENTIFIC WORKSHOP 2016: Our 3rd workshop was on March 29-31, 2016. This workshop brings together scientists from across the globe working together for a cure. Next scientific workshop will be planned for 2018.
On behalf of Nicholas, we thank you for your generous support in helping to fulfill ours and John Tanner’s “Promise to Nicholas” to find a cure for Batten disease. All of these efforts are made possible with your support and tax deductible donation.
Number Pick-up
Sunday, October 2th from 8:30am – at the start of the race.
at the Wayland Town Building parking lot.
Top 3 Women and Top 3 Men will receive a trophy
Behind the Wayland Town Buildings
41 Cochituate Road Wayland MA
